Ugh. To update everyone let me first say that I went to my doctor in Jackson Tennessee about my concerns and was told that my daughter was "normal". I have a few choice words for that lady! Anywho, Today I took Maggie Shea in for her 9 month check up.
When I arrived I was given a 10 month assessment to fill out. I marked "yes" for everything she should be doing as a 10 month old (at 9 months), PLUS she is walking. The doctor just could not believe she is so tiny and can walk.
Problem 1: Weight. I told the dr in Jackson that i felt like she should be gaining more than 1/2 pound or 1 pound a month. but lets start at the beginning...When she was born she was 7lbs 12oz. when we left the hospital she was 7lbs 7 oz. A week later she was 7 lbs 4 oz. Finally around 2 1/2 or 3 months she was finally back up to her birth weight. I asked the dr if she was growing normally (bc she just wasnt gaining like my boys did) and i was assured that she was doing just fine and she was in the 50th percentile for weight (and height). Well at her 6 month check up she was still in the 50th percentile...today she was in the 3rd. Yes, she went from 50th to 3rd in 3 months. The doctor today said that it could be a problem with her thyroid...So we get to go back in a month and i get to keep a detailed dietary journal until then. I pray everything goes well
Problem 2: her head is little. lol. yes. The doctor said that her head is very little for her age. she's just little all over. i mean she is 27 inches long and weighs 15 pounds. Heck, i was waiting for the day she'd hit 15 pounds!
Problem 3: Here is the whopper. The doctor was feeling around for Maggies soft spot. She rubbed all over her head for a good 5 minutes with no luck. The poor babys head was red when she was done. So now the fun (NOT) starts. The doctor is 90-95% sure that her skull has fused together (which shouldnt happen for like 8 more months). This means that her brain doesnt have room to grow. This could cause a number of things (none of them good). So i find out tomorrow when we get to drive to Nashville so they can put my daughter to sleep for this CT scan. I am not looking forward to that AT ALL. Depending on the results, she may have to have surgery. (again, i am not looking forward to that). They doctor today said she's pretty sure Maggie will need the surgery because there was not even the smallest indentation of a soft spot.
UGH, anyway, the thought of having to just put her to sleep for this test makes my stomach crawl. Not to mention the possibility of surgery. A very good friend of mine pointed out the positives. My daughter isn't dying, she doesnt have cancer, she's not fighting for her life. (Thanks Jess). But selfishly, she's MY baby. The last baby I will ever have. I just don't know what I would do if she wasnt in my life. When I see her with her brother...ugh. (I am typing through teary eyes at this point).
I am just asking for prayers. Pray that God knows what He is doing and guides these doctors in whatever may need to happen.
And I know that so many children have it worse so please dont tell me to suck it up and be thankful. I AM thankful for my children and I would die for them. It's just scary not knowing what is going on and what is going to happen. Thank you so much for taking the time to read this and please take the time to say a little prayer. I will update everyone as soon as we have more information.
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